Epidermolysis Bullosa (EB) — The Worst Disease You’ve Never Heard Of.™
I wrote a couple of weeks ago about the debra of America office in SL – /debra-of-america/.
They also have a small satellite office also – http://maps.secondlife.com/secondlife/Scoop%20Motors/36/34/21. Please do visit one of the 2 offices and help raise awareness for this very unknown disease.
The SIM is also home to the “Demonic Blackhearts” and “Wayward Angels” Motorcycle Clubs. The SIM is not restricted to just these two clubs, and it has the most amazing roadway heading off up in the sky (1,000 meters long I believe)… It goes on for a loooooong time (see pictures below) and you can rez your own motorcycle (or car) and explore things…
In addition to this, you will find “The Cellar” fashion store which is the fashion store for Cerise Emor, who is also the main SL person for the dEBra charity. Please check this out while you are there or seek out a store near you…
But do first make a stop at the dEBra office and donate some Linden 🙂
What is debra and EB?
DebRA is dedicated to finding a cure for Epidermolysis Bullosa (EB) – The Worst Disease You’ve Never Heard Of.™ EB is a rare genetic skin disease causing chronic, painful blistering affecting 1 in every 20,000 live births in the US.
The Dystrophic Epidermolysis Bullosa Research Association of America (DebRA), was founded over 30 years ago and is the only national nonprofit organization dedicated to funding research and providing supportive services and programs for those with Epidermolysis Bullosa (EB) — The Worst Disease You’ve Never Heard Of.™ Visit: www.debra.org
Epidermolysis Bullosa, or EB, is a very rare genetic connective tissue disorder that affects 1 child out of every 20,000 births (that means about 200 children a year are born with EB). EB is actually a group of disorders that share a prominent manifestation of extremely fragile skin that blisters and tears from friction or trauma. Internal organs and bodily systems can also be seriously affected by EB. The list of secondary complications can be long and may require multiple interventions from a range of medical specialists. As of today, there is no cure or treatment. Daily wound care, pain management and protective bandaging are the only options available.
debra of America in SL satellite office – http://maps.secondlife.com/secondlife/Scoop%20Motors/36/34/21