CF University – Cystic Fibrosis University – http://maps.secondlife.com/secondlife/BOOMER%20ISLAND/17/73/28
Cystic Fibrosis Education Presented By The Boomer Esiason Foundation
Presented by the Boomer Esiason Foundation, this region aims to educate the general public about cystic fibrosis, provides valuable resources to sufferers, and is a fun place to relax and socialize with the CF community.
My SL charities exploring continues with a SIM dedicated to Cystic Fibrosis. The CF University by The Boomer Eliason Foundation is a very lovely SIM. They have a beautiful board walk down the side of a river, a balloon ride tour of the SIM, educational buildings and a gift shop.
One of my favourite spots was the ballroom which I assume they hold functions in from time to time.
I spent a lot of time in the building explaining treatments, symptoms, diagnosis, etc in. Each of the boards has a notecard that explains the various parts of the information on Cystic Fibrosis. The gift shop has a number of items you can buy along with a lot of freebies for you. Off to the side, they also have a sandbox for you to go play in and build to your hearts content.
Please do visit this SIM and give your support to this charity and visit their website for more information amd to donate online… As with most charities, they can always do with your financial support 🙂
What Is Cystic Fibrosis?
Cystic fibrosis is a fatal genetic disorder that affects more than 30,000 Americans. Although CF is not yet curable, the situation is not hopeless. Every day since the CF gene was discovered in 1989, the pace of CF research has greatly accelerated. Today, 40 percent of the CF population is over the age of 18. And thanks to advances in medicine and technology, these adults are enjoying an improved quality of life.
Cystic fibrosis is a genetic disease. That means people inherit it from their parents through genes (or DNA), which also determine a lot of other characteristics, including height, hair color and eye color. Genes, found in the nucleus of all the body’s cells, control cell function by serving as the blueprint for the production of proteins.
The severity of cystic fibrosis symptoms is different from person to person. New research shows that the severity of CF symptoms is partly based on the types of CF gene mutations, or defects. Scientists have found more than 1,500 different mutations of the CF gene.
How can you know for sure if you or your child has cystic fibrosis? If someone in your family has the disease, could you pass it down to your children?
Staying healthy and maintaining optimal lung function requires people with cystic fibrosis to follow a regular treatment routine. The therapies for CF include airway clearance techniques, a variety of medications and good nutrition. If and when a person with CF develops severe lung disease, they may discuss the option of lung transplantation with their CF care team.
Scientists and researchers are working every day to find a cure for cystic fibrosis and also to develop treatments that greatly improve the quality of life for CF patients. Each day since the cystic fibrosis gene was discovered in 1989, the pace of CF research has greatly accelerated, and scientists continue to find ways to help those who live with the disease.
*All the above text about CF is by The Boomer Esiason Foundation.